“Another year ago I swam two kilometers a day, today I go out in an electric chair”

ALS causes a progressive weakness and a muscle source associated with muscle shaking. AdobeStock

TESTIMONY – On the occasion of World Amyotrophic Lateral Sclerosis Day – or “Charcot’s disease” – Le Figaro collected the testimony of Katherine, 67, recently afflicted with this destructive and incurable disease.

It is one of those rare diseases whose causes remain a mystery to the medical community. Amyotrophic lateral sclerosis (ALS) is a serious neurodegenerative disease that results in progressive paralysis of the muscles involved in voluntary motor, breathing, password, and swallowing. Caused by the progressive destruction of motor neurons, the cells that control muscles, it is generally between 50 and 75 years old.

In the vast majority of cases, the patient retains all his cognitive faculties. So he is fully aware of what is happening to him. Three to five years after the onset of symptoms, respiratory muscle involvement generally leads to the patient’s death. About 8,000 people are currently affected by this serious disease and four people die every day, according to the Association for ALS Research (ARSLA).

Katherine Icardi Lazareff, 67. This retiree, a mother of three …

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