Thierry, a 58-year-old father from a Reunion family, has contracted Charcot’s disease: “I have between 3 and 5 years to live”

Thierry, 58, has amyotrophic lateral sclerosis (ALS) / Charcot’s disease. He was diagnosed a year ago with a beating for this father who is losing the use of his limbs and eloquence. Doctors tell her that she has between 3 and 5 years to live. Thierry agrees to testify for

This Tuesday, June 21, is World Charcot Day or Amyotrophic Lateral Sclerosis (ALS). It is a rare and serious neurodegenerative disease. The origin of this disease is still unknown at this time.

A race against the clock

On July 15, 2021, specialists diagnosed Thierry Reunion’s father with amyotrophic lateral sclerosis (ALS) / Charcot’s disease. Thierry had lost a lot of weight and also the use of certain members of his body (legs, arms, tongue, etc.). After several examinations, the doctors tell him that he has between 3 and 5 years to live.

Thierry then wants to fight to achieve these goals and does not want to give up: “It’s a real blow. It happened overnight, you can’t expect it. It can affect anyone. In La Réunion we are in our fifties today and there is no there is no treatment. I want to fight to stay alive and try to move the research forward. “ he explains.

Thierry has two forms of the disease: bulbar and spinal. For the bulbous form, the father loses the use of his tongue, he cannot articulate normally and has difficulty feeding. For the spinal shape, his right arm, his right leg are atrophied.

Sudden weight loss in a person is one of the first signs of Charcot’s disease.

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Matthieu Patou-Parvédy


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